NCI, ACS will fund research into survivorship transition, pediatric cancer survivors

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Survivorship News

April 16, 2021

2 min read

Source / Disclosures Published by:

Source:

Mayer DK, et al. Research survival finance portfolios. Presented at: Cancer Center Survivorship Research Forum (virtual meeting); April 15-16, 2021.

Disclosures:
Mayer and Tonorezos do not report any relevant disclosures.

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Better outcomes for childhood and adolescent / young adult cancer survivors and a successful transition to follow-up care are among the research priorities funded by the National Cancer Institute and the American Cancer Society.

Deborah K. Mayer, PhD, RN, OACN, FAAN, cancer survivor director at UNC Linebarger Comprehensive Cancer Center, discussed the need for survival studies to be more inclusive and representative of the diverse survivor population.

Deborah K. Mayer

“There are very few long-term survival studies beyond 5 years, although we know that survivors live much longer,” Mayer said at the meeting. “In addition, about half of all survival studies are done in breast cancer. That’s great if you have breast cancer, but not as good if you have other cancers. We also know that most survivors are over 65, and yet very few studies look explicitly at older survivors. ”

In an interview with Healio prior to the session, presenter Emily S. Tonorezos, MD, MPH, Director of NCI’s Office of Cancer Survivorship, discussed two funding options for survival research: RFA 19-033, “Improving Outcomes for Pediatric, Adolescent, and Young Adult Cancer Survivors” and RFA 19-035, “Management Optimization and the results for cancer survivors “Switching to aftercare. “

Emily S. Tonorezos

“There is quite a mystery about how to successfully transfer survivors that was discussed in a previous session by Dr. Mayer,” Tonorezos said in the interview. “Oncology just doesn’t have the capacity. When you think about the growing population of survivors and their needs, for the most part they don’t belong in oncology. But figuring out how to best engage primary care is a real challenge. “

Tonorezos discussed some of the barriers to facilitating a successful transition, including a lack of clarity about who is responsible for different components of care, lack of coordination and communication between survivors, a need for ongoing education of health care providers about new treatments, and the lack of substantial impact. survivors’ care plans on the results.

“The purpose of this research is to stimulate the development, testing and / or scaling of innovative, feasible and effective models for adult cancer patients moving from active treatment to aftercare,” said Tonorezos.

The purpose of RFA 19-033 is to support the scientific development of treatments to address the psychosocial and physical effects in childhood cancer / AYA cancer survivors.

“This research will focus on people with cancer between the ages of 15 and 39,” said Tonorezos. “This population is unique for so many reasons: the types of cancer, the biology, the pathology, are different.”

The research will focus on the needs of this high-priority population and identify gaps in care, Tonorezos said. It is intended for topics such as telecare, self-management portals, and healthcare inequalities for pediatric / AYA survivors.

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